So I have finished my first four weeks on Avonex. I did half doses so ease my body into the med. Here's how I have reacted:
*I'm moody. It comes and goes. One minute I'm feeling optimistic and the next minute I feel like this ms is going to kick my butt. I really don't like this.
*I have a rash on both my thighs. Yup, about 2 inches all the way around the injection sites. The doc is not too worried about it, and it seems to be getting better so we'll see.
*My legs ache. This comes and goes throughout the week. Not sure if it's the ms or the med.
*I think I'm more tired than before, especially a couple of days after the shot.
Well, that's about it. Not too bad, I know. I would really feel better about this med if the ms would just calm down. I'm still getting new flare-ups. A couple weeks before beginning the Avonex my feet got the numb/tingling thing. I still have it, but it seems to have eased up on my insteps and is worse on the first 3 toes of each foot. Lately my legs feel tired, also. This scares me the most....
So I will try to stay optimistic, although it's difficult. In a perfect world (well, we wouldn't have ms in a perfect world) but it would be good if I could just get symptom free and see how this Avonex will work for me. In the past when I have gotten flare-ups, they were very minor and always cleared up. I'm not sure what's different now. I can't help but wonder if I am doing something different. I'm eating better, so it's not that. Could it be the stress of it all? Any flare-up adds stress to our lives, so is it a viscous cycle...stress making the ms worse and the worse ms making us stressed? Although I've dabbled in meditation, maybe it's time to really be serious about it. Anything is worth a try....
Yes this MS thing is a bummer. I've dabbled in the meditation thing as well. I think if I could stick to it. Maybe get a routine it would prove to be helpful.
ReplyDeleteNicole
Hey Nicole~ Thanks for stopping by. I checked out your blog...very impressive!
ReplyDeleteMeditation is very, very useful for me when it comes to dealing with stress. Sometimes I do really passive meditation before bed if I don't have time for anything more active. I'll put on a 'meditation' music pandora radio station, lay in bed, close my eyes and take long deep breaths while thinking about something soothing. I find it pretty effective.
ReplyDeleteWishing you all the best!