I've decided to change my blog. I've decided that complaining about how I feel about having ms or about my symptoms at the moment don't make me feel any better. In fact, I think it makes me feel worse. I've been having quite a pity party the past few nights.... sitting up reading blogs about people struggling with their ms and feeling terribly sorry for myself. That's finished.
I haven't talked too much about my diet. I follow quite a strict diet, which makes me feel like I have some control over this disease. I eat gluten, dairy, egg, and legume free. I also eat very low fat. I have read the research and truly feel that this is the best choice for me. I also take quite a few supplements specific to helping heal my ms.
As I've spoken about in past blogs, I feel that the mind has a huge effect on the healing powers of the body. I am currently reading George Jelinek's book Overcoming Multiple Sclerosis. It has really inspired me to begin taking a close look at my emotional health and thought processes and their effects on my disease. Dr. Jelinek feels that meditation is an important step in the healing process and as I have written in the past, this is something that I want to begin practicing daily.
So here it is. My new blog. I will report out on my food intake including daily menus (which I wish I had to look at when I was just starting out), supplements, and my progress with meditation and my new more positive attitude. Thanks for reading!
My name is Karen and I was diagnosed with ms in 1992 when I was 23 years old. The ms has been fairly quiet for the past 18 years. I am currently enduring the most severe flare-up yet. I have spent a lot of time over the past few months reading blogs about other peoples bravery in dealing with ms. The purpose of this blog is to help me feel like I'm not in this alone, for no one really understands what we are going through like someone else with ms does.
Wednesday, June 29, 2011
Monday, June 20, 2011
The ms roller-coaster....
It's been a few weeks since I've posted so here's an update. I now (finally) have my Avonex shipments set up and am taking the full dose of Avonex each week. I did miss almost a week due to insurance issues which changed my injection day from Friday to Wednesday. This actually works out better because I don't feel like garbage for the weekend. The night of my first full dose I had chills (it was 90 degrees and humid) and I'm sure I had a fever. I did feel better by morning and was able to work with no issues except for being very tired. This didn't happen last week so maybe it was a one-time deal and I'll have smoother sailing with it from now on.
I am feeling better these past few days. I still have some mild numbness in my right hand and the numbness/tingling in my feel is almost gone. My legs do get a mild tingling from the waist down. This comes and goes. I have more energy lately which is nice.
Only a few more days of school and I am out for summer vacation. This worries me a bit because I am typically pretty active with my two kids and want to be able to do things with them this summer, too. I'll just take it one day at a time....
I am feeling better these past few days. I still have some mild numbness in my right hand and the numbness/tingling in my feel is almost gone. My legs do get a mild tingling from the waist down. This comes and goes. I have more energy lately which is nice.
Only a few more days of school and I am out for summer vacation. This worries me a bit because I am typically pretty active with my two kids and want to be able to do things with them this summer, too. I'll just take it one day at a time....
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